Wednesday, May 25, 2011

Pediatric Palliative Care Online Courses Available

The National Hospice and Palliative Care Organization (NHPCO)'s Pediatric Palliative Care Online Training Series provides instant access to educational resources for pediatric care providers.  The series offers 10 online educational modules written by leading pediatric palliative/hospice care experts across the country and will be available through NHPCO's E-Online in 2011. 

Two of the ten modules are now available :
and
Pediatric Palliative Care delivery Models

Each module offers valuable content, case studies and practical examples to help your organization deliver quality care for children with life-threatening conditions and their families.

Tuesday, May 24, 2011

Article of Interest

Impact of death and dying on the personal lives and practices of palliative and hospice care professionals.
Sinclair S.     CMAJ. 2011 Feb 8;183(2):180-7. Epub 2010 Dec 6.    PMID:   21135081.  FREE full-text vailable at :  http://www.cmaj.ca/cgi/content/full/183/2/180   Accessed 24 May 2011. 

Abstract

Background Working within the landscape of death and dying, professionals in palliative and hospice care provide insight into the nature of mortality that may be of benefit to individuals facing the end of life. Much less is known about how these professionals incorporate these experiences into their personal lives and clinical practices. Methods This ethnographic inquiry used semi-structured interviews and participant observation to elicit an in-depth understanding of the impact of death and dying on the personal lives of national key leaders (n = 6) and frontline clinicians (n = 24) involved in end-of-life care in Canada. Analysis of findings occurred in the field through constant comparative method and member checking, with more formal levels of analysis occurring after the data-collection phase. Results Eleven specific themes, organized under three overarching categories (past, present and future), were discovered. Early life experiences with death were a common and prominent feature, serving as a major motivator in participants' career path of end-of-life care. Clinical exposure to death and dying taught participants to live in the present, cultivate a spiritual life, reflect on their own mortality and reflect deeply on the continuity of life. Interpretation Participants reported that their work provided a unique opportunity for them to discover meaning in life through the lessons of their patients, and an opportunity to incorporate these teachings in their own lives. Although Western society has been described as a "death-denying" culture, the participants felt that their frequent exposure to death and dying was largely positive, fostering meaning in the present and curiosity about the continuity of life. 

Monday, May 23, 2011

Consider the Conversation

There's a link below to a clip of Consider the Conversation. Check it out!
It's the film we were hoping to share for National Healthcare Decisions Day, April 16  ...better later than never. We can share it for NHDD next year.
Let's call to request it be shown by PBS here.
Nancy
 
Consider the Conversation Documentary Film    Website

From: Michael Bernhagen [mailto:mike.bernhagen@rainbowhospicecare.org]
Sent: Thursday, May 19, 2011 2:19 PM

I thought all of you might appreciate hearing that Consider the Conversation: A Documentary on a Taboo Subject, the film I co-produced with Wisconsin’s Teacher of the Year, Terry Kaldhusdal, will be released to PBS stations nationwide via the National Educational Telecommunications Association on June 18th.  Without question, this represents a unique opportunity for healthcare organizations throughout America to educate their communities and potentially partner with their local PBS station in the effort.
If you'd like to see Consider the Conversation broadcast in your city, please call or e-mail your local PBS affiliate today.  And, to view the first five minutes of the film, please click here.
Achievement of this goal would not have been possible without the support of so many caring people including the Rainbow Hospice Foundation, our families, interviewees, donors and the countless folks who provided access for filming, watched us present over the past year or purchased the DVD on Amazon.com.
All the best,
Mike Bernhagen

Tuesday, May 3, 2011

"Dad...this film is all the things I need you to hear."

This short film is a perfect fit for today's world filled with distractions and...hey what's that shiny object over there.  Sorry.

This 4 minute film titled "THE UNSPOKEN" from Jason van Genderen was the runner up at Tropfest Australia 2011  and is more powerful than even a Hallmark commercial, more heartfelt then a torch song, and evidence that we are capable of appreciating people before they are dead and gone. 




Enjoy!

Article of Interest : Identifying Patients in Need of Palliative Care Assessment ...

J Palliat Med. 2011 Jan;14(1):17-23. Epub 2010 Dec 6.         

Identifying patients in need of a palliative care assessment in the hospital setting: a consensus report from the Center to Advance Palliative Care.

Weissman DE, Meier DE.             Link to this Article (Affinity or Paid Access Only)

Source

Medical College of Wisconsin/Froedtert Hospital , Milwaukee, Wisconsin, USA. dweissma@mcu.edu

Abstract

Workforce shortages, late referrals, and palliative care program resource constraints present significant barriers to meeting the needs of hospitalized patients facing serious illnesses. The Center to Advance Palliative Care convened a consensus panel to select criteria by which patients at high risk for unmet palliative care needs can be identified in advance for a palliative care screening assessment. The consensus panel developed primary and secondary criteria for two checklists-one to use for screening at the time of admission and one for daily patient rounds. The consensus panel believes that by implementing a checklist approach to screening patients for unmet palliative care needs, combined with educational initiatives and other system-change work, hospital staff engaged in day-to-day patient care can identify a majority of such needs, reserving specialty palliative care services for more complex problems.


PMID:  21133809
Dr. Homburg's commentary :
A recent article about Palliative Care needs in the hospital setting discusses this issue of palliative sedation.
It explains primary palliative care that everyone should be able to do (simple advance care planning, establishing goals of care, discussing DNR status, pain and symptom management, support of caregivers) & specialty level Palliative Care that only those certified should do. Specialty Palliative care Consultation is necessary in my opinion, for the initiation of Palliative Sedation. Specialty privileges should be available to AHS Medical Staff with this certification. Currently Dr Haine and I have passed our certification exam.
The article suggests a consult with a Palliative Care specialist might also be considered for prolonged ICU stays (> 7-10 days?), disagreements about plan of care, pre LVAT, pre AICD, pre feeding tube, pre trach and of course difficult issues with advance care planning, establishing goals of care, discussing DNR status, pain and symptom management, support of caregivers. As the AHS Palliative Care program grows, we'll need to establish better screening to provide appropriate Palliative Care to all the AHS patients in and out of the hospital setting who would benefit from our service.

Improving Advanced Illness Care : The Evolution of State POLST Programs

The link below has a 2-page exec summary and a 64-page full report by the AARP on the POLST paradigm.

As we work to bring POLST to "standard of care" in the Fox Cities/Oshkosh area, endorsements by national organizations will make introduction and implementation smoother.
Thanks for sharing with us, Sara [Buscher]!
Nancy
Improving Advanced Ilnness Care : The Evolution of State POLST Programshttp://www.aarp.org/health/doctors-hospitals/info-04-2011/polst-04-11.html

"Physician Orders for Life-Sustaining Treatment (POLST) is a promising program to elicit and honor the treatment goals of people with advanced progressive illness or frailty. Research shows that POLST effectively communicates patient treatment choices, whatever they may be, without sacrificing comfort care. This report documents the evolution of POLST in 12 states and highlights lessons learned for states developing and implementing new programs." -- AARP Public Policy Report

Monday, May 2, 2011

Articles of Note

Griffith JD, Mycyk MB, Kyriacou DN.
J Pain. 2008 Jan;9(1):88-94. Epub 2007 Nov 5.   PMID:  17981511.
         Link to Article.  (Affinity or paid access only)

Sinclair S.
CMAJ. 2011 Feb 8;183(2):180-7. Epub 2010 Dec 6.    PMID:  21135081.
         Link to Article.  (Free access)

Bede P, Oliver D, Stodart J, van den Berg L, Simmons Z, O Brannagáin D, Borasio GD, Hardiman O.
J Neurol Neurosurg Psychiatry. 2011 Apr;82(4):413-8. Epub 2011 Feb 5.   PMID:   21297150.
         Link to Article.  (Affinity or paid access only)