Below is a link to a great resource on Pediatric Palliative Care.
Fortunately pediatric end-of-life care is rare, but we all want to have the best information when the need arises.
Nancy
Basic Symptom Control in Paediatric Palliative Care is available free to download at www.act.org.uk/symptomcontrol
UK children’s palliative care charity ACT has launched a newly revised and extended key resource for all doctors and nurses providing care and support to terminally ill or life-threatened children. The resource, Basic Symptom Control in Paediatric Palliative Care aims to provide doctors and nursing staff with an ‘all in one’ reference tool for symptom management and children’s palliative care medicines.
Basic Symptom Control in Paediatric Palliative Care contains information about how to appropriately treat a wide range of symptoms and contains 28 chapters on the most common symptoms and issues within children’s palliative care. It also includes a comprehensive prescribing formulary to support those prescribing in children’s palliative medicine, covering over 90 medicines. The formulary has been adapted from the Association of Paediatric Palliative Medicine’s master formulary for children’s palliative medicine.
Caring for babies, children and young people who have a terminal or life-threatening health condition can be very daunting for GPs and paediatricians. Many GPs may only care for one or two children with life-limiting conditions in their entire working life. Basic Symptom Control in Paediatric Palliative Care has been designed to address some of the fears and challenges that these professionals may face.
Basic Symptom Control in Paediatric Palliative Care has been developed and edited by Dr Satbir Singh Jassal, GP and Medical Director at Rainbows Children’s Hospice, with contributions and peer reviews from 30 leading paediatric and palliative care specialists. The resource has been published by ACT and is funded by the Department of Health. Basic Symptom Control in Paediatric Palliative Care is available free to download at www.act.org.uk/symptomcontrol
